Regulation of International Direct-to-Participant Research

Mark A. Rothstein, University of Louisville School of Medicine

 

Date: 2017-03-21
Time: 4:30pm - 6:00pm
Location: Medical Education-Telemedicine (Bldg #845)., School of Medicine, UC San Diego

Guest Speaker: Mark A. Rothstein, University of Louisville
Director, Institute for Bioethics, Health Policy and Law, School of Medicine


*Registration is Required.
[registration]
Host: UC San Diego Research Ethics Program


DESCRIPTION/ABSTRACT:

This seminar with University of Louisville bioethicist Mark A. Rothstein is part of the Research Integrity Series at UC San Diego, supported by the Vice Chancellor for Research and the Research Ethics Program.

On March 21st, the Research Ethics Program invites you to attend the fifth seminar in our Research Integrity Series, “Regulation of International Direct-to-Participant Research,” with guest speaker Mark A. Rothstein, J.D., Director of the Institute for Bioethics, Health Policy, and Law at the University of Louisville School of Medicine.

Dr. Rothstein will discuss how the Direct-to-Participant (DTP) research is a novel strategy using the internet to recruit, consent, and enroll individuals. This technique is especially valuable for research on rare disorders. It can be more expeditious, generate more representative and diverse samples, be more participatory and democratic, and lead to discoveries of greater relevance for heterogeneous populations. The main impediments stem from legal, ethical, and cultural concerns about possible exploitation by foreign researchers. This talk will address whether it is possible to use DTP research in a legal and ethical manner around the world.

To learn more visit the Research Integrity Series web page.  The Research Ethics Program serves as a resource for the entire UC San Diego campus to identify and address ethical challenges intrinsic to the conduct of science, engineering, and other forms of academic scholarship, foster learning about research ethics, and meet federal funding requirements for education in research ethics. The Program seeks to maintain and sustain UC San Diego's success and identification as an international leader in fostering integrity in research.

To RSVP, please click here or on the Registration link below.


SPEAKER BIO:

Professor Mark A. Rothstein, J.D., holds the Herbert F. Boehl Chair of Law and Medicine in the University of Louisville School of Medcine. He has concentrated his research on health privacy, research ethics, genetics, and public health. He serves as Department Editor for Public Health Ethics of the American Journal of Public Health and he writes a regular column on bioethics for the Journal of Law, Medicine & Ethics. Rothstein is Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine.

MORE INFORMATION:

For questions, please contact Rebekah Yohe at ethics@ucsd.edu

Light refreshments will be served. Continuing Medical Education (CME) credit available.

*Registration is Required